Run for NF

Dear friends, Some of you may not know this, but I am affected by a genetic disorder called Neurofibromatosis. Neurofibromatosis (NF) is a genetic disorder of the nervous system which causes tumors to form on the nerves anywhere in the body at any time. My condition is fairly mild, but I do have an occasional… Continue reading Run for NF

Me and Mommy

Daddy took this picture of me and Mommy today. She was tickling my feet and blowing on my tummy. It was so much fun! I was cooing and smiling! I loved it! I hope we do it again soon! Love,Sebastian